I'm a very introspective learner. I love it when things apply directly to me and my life.
I loved my biology classes in high school because when they would talk about things like cells and genetics it would apply directly to my life. I have loved my human anatomy classes because when they get to things like blood, livers, gall bladders, spleens, and medical procedures I'm like "Oh my gosh. That's my life." It also made me feel smart because my teachers didn't dumb it down for me like doctors and nurses usually do for patients.
My favorite part of my child development classes are things that apply directly to my childhood. I liked my parenthood and marriage classes because I could see how they will be applied to my life in the future.
If I learn something that I've had previous experience with or can apply to my current situation, I'm a happy girl and I learn it much faster and it sticks with me longer. I think that there's almost a sense of validation that I get from all these classes and things I'm learning, a sense that I'm not the only one who experiences things the things I do. I get a certain sense of normalcy. I also get a chance often to show off my abnormal side and get validation for the fact that I've been through hard things. I try not to do that too often because if I do I start to just feel sorry for myself, but sometimes it's good to feel like I'm accomplishing the normal while being abnormal.
I'm quickly realizing that the Adolescent Development class that I'm currently taking is going to be one of those classes where I get really introspective and relate everything I'm learning to my life, more than I was expecting it to be.
The past two class periods we were talking about adolescent health, and I wasn't really expecting it to apply to me too much. I was fairly healthy as a teenager, never hospitalized once. I was surprised how much of what I was learning I could really relate to.
We watched a movie about teens in hospitals and they talked about the constant poking and beeping machines and losing control and privacy and people coming into your room during the middle of the night and asking you the same questions over and over again. One of the parts that made me laugh the most was when they talked about the medical students and residents coming in a big group and just like listening and staring at you and taking notes. I can relate to that one.
Then we watched another movie that a kid made to explain to his peers about the accident that put him in a wheel chair so that they would better understand how to react to him. I thought it was a brilliant idea.
After that we talked about teenagers self image and how that is impacted by chronic illness and all the restrictions that adolescents have when they live with a chronic illness. We also talked about the dual need to feel normal but also to have people understand all the things you have been through and how they can be conflicting.
The whole time we were talking about this I felt validated. I felt like "Ok, I'm not the only who has felt this way." I remember always feeling somewhat like I was the only one experiencing everything, especially when it came to those nasty little rare blood disorder experiences, even though I logically understood that I wasn't the only one. I don't know, it's like sometimes it's cool to be the oddity - the unique one - like when you attend your Stats class and you talk about the normal distribution of hemoglobin and your hemoglobin is literally off the charts (like no joke, not even on there in the
abnormal area). But sometimes I wanted someone to understand exactly. I mean people can empathize, and they do and it does/has made me feel better. My parents have always tried to understand and I think they do better then anyone else I know. But it's like unless you've actually been through it, you don't
really understand.
Some days I feel completely normal and don't even think about my blood disorder. Sometimes I look at myself and think "Oh my gosh I am yellow! I'm a freak! I'm like a neon sign! I'm pretty sure I should be glowing in the dark at this point!", not as much as I used to though. Sometimes I would lay awake at night freaking out about what would happen the next time I got sick enough to go to the hospital and thinking that for sure I was going to die the next time it happened. Sometimes I'd freak out about what I would do the next time I had to get my blood drawn or get a shot or get an IV or have a surgery. I wouldn't even be feeling sick and I'd worry about these things. Sometimes I'd even think about what I'd do if I ever got cured or how life would be without the blood disorder. How different would I be then?
I remember sitting on my floor in the middle of the night and thinking "You know my doctors are pretty good at treating my physical symptoms. Everyone is always so concerned about how healthy I am. Everyone can see my yellow skin. Everyone knows
somethings wrong with me and they are very concerned about the physical effects of my disorder. But what about the emotional effects? What about the social effects? What about how freaked out I am over needles and getting sick? What about how no guy likes me or will ever like me because I'm like a freaking neon sign? What about how I'll never get married because who wants to marry a bag of medical bills and that's all I am? What about how I'll never be pretty again because of the whole neon sign thing? What about how terrified I am of the whole world because what if it causes pain like the pain I used to feel when I was little and sick? What about how upset I am because I'll always be the slowest and the worst at sports and I always get so tired?" (Yeah I was a little dramatic back then.) Honestly that's what I used to think, not all the time, but some of the time. Luckily as I've gotten older I've been able to work through a lot of these issues on my own. But I used to think I was kind of weird and that I was probably overreacting a lot in those emotional moments. I still think maybe I was a little bit but attending class today I realized that they are actually pretty normal things for an teenager with chronic illness to feel and think - even if they weren't actually in the hospital. I feel validated and I don't feel so weird for feeling like my disorder affected me more than just physically. I think my family probably realized this to a certain extent (my parents are super observant like that), but I know I at least tried to keep from them and everyone else just how much I felt that way and I'd like to think succeeded. I just can't even describe how much better I feel knowing that I'm not weird or overreacting about how my disorder affected me. This just added another level of understanding in my life.
I'm going to a new doctor, trying new treatments, and in some ways I'm excited. I feel so grown up going to the doctor all by myself, even though I also feel a little nervous. I can get poked with out screaming, yelling, crying, kicking, and throwing a fit. I'm twenty but there's still a part of me that wants to act like the terrified two year old every time I go in. But I don't. And that's a big improvement for me. I feel more in control this time around. I don't know, there is something about the knowledge of knowing that I could say no, at any point in this process, and there is nothing my doctors, nurses, parents, or anyone else can do about it. It's a powerful feeling, this feeling of control. And just knowing that I have that option, that control, makes saying yes easier. What can I say, agency like that is amazing. At the same time I'm nervous. What if it doesn't work? What if I'm just feeding my hypochondriac-ism? What if it's more painful than helpful? What if there are no new answers? What if I've just got to keep putting up with this for the rest of my life? What if I've healed enough that I don't need to seek healing anymore? What if this is all just bringing up old emotions that I had already worked through and making me work through them all over again?
I don't feel like I'm looking for a "cure" for the jaundice anymore. I found that "cure" and it didn't fix everything like I thought it would. Now I'm looking for a "cure" for the anemia, for the tiredness. But what if it doesn't fix everything like I think it will?
If I do find a "cure" I'll probably just be handed a whole new set of problems to work out. That's life isn't it. Do I want to switch these problems I've had forever, that I know like the back of my hand, for a new set of problems? These problems, these issues, are comfortable and predictable. I can handle these problems. I don't know if I can handle new problems.
The thing is that I wouldn't trade this whole experience for the world. If you want a succinct way of how I feel about my blood disorder and everything I've learned from this you can watch this
Stacey Kramer: The best gift I ever survived | Video on TED.com. Sadly, I obviously can't put how I feel into three minutes or less. But I have learned so much. I have learned compassion and empathy. I've learned I'm stronger than I think I am and that I can do hard things. I've learned that normal is overrated. I've learned to ask for help when I need it. I've learned that I'm loved and that when I can't make it on my own, there is always someone there to help lift me. I've learned that life is complicated but it's supposed to be that way. I've learned that as crappy as your life may be, there is always someone that has it worse off. I've found my course for life because of this challenge. I've learned that challenges are very personal and unique and situated exactly how they are needed for each individual person. I've learned to rely on the Lord, on the scriptures, and on prayer when I cannot go any further on my own. I've learned that I have a very personal Father in Heaven who know's exactly what I need and knows that I am a very introspective learner and so He gave me a challenge that would teach me things I couldn't learn any other way and would set me in a course that I wouldn't have chosen for myself. I have learned that with the right perspective, challenges can be blessings in disguise.
Playlist:
"Yellow" by Coldplay
"The Wizard and I" from Wicked
Skin (Sarabeth) by Rascal Flatts
"Lessons Learned" by Carrie Underwood